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A Surbiton couple, whose 9 year-old daughter has Dravet Syndrome, a rare, life-limiting, form of epilepsy, are backing a ...
Things took a turn when mom discovered Dravet syndrome while looking into what her son's symptoms could possibly mean. The condition is a rare form of epilepsy that causes frequent seizures. "In ...
Most adults living with Dravet syndrome will never be unable to work or care for themselves, according to the Children’s Hospital of Philadelphia. Patient advocates in Georgia say the website ...
A Surbiton couple is backing a UK-wide campaign to raise awareness of a rare form of epilepsy that affects their daughter. Jennifer and Tom Allen's nine-year-old daughter, Beth, has Dravet Syndrome.
Dravet Syndrome causes severe and difficult-to-control seizures, varying degrees of learning disability and a spectrum of associated conditions called ‘comorbidities’.
UCB’s Fintepla has been approved to treat seizures associated with two epilepsy disorders and now has posted data that could ...
Dravet syndrome is a severe form of epilepsy, usually diagnosed in infancy, that is associated with developmental delays and severe seizures. It has long been recognized for its neurological symptoms, ...
UCB has shared promising results from a late-stage study of fenfluramine in patients with an ultra-rare form of epilepsy. The ...
Dravet Syndrome is a rare, severe and lifelong form of epilepsy. There is very little awareness about it, and even less money being raised and going towards a cure.