Rett syndrome is a devastating rare genetic childhood disorder primarily affecting girls. Merely 1 out of 10,000 girls are ...

UCB has shared promising results from a late-stage study of fenfluramine in patients with an ultra-rare form of epilepsy. The ...

The Stanley Brothers created Charlotte's Web, the CBD supplement that’s worked wonders on seizures. Now they are developing ...

A Surbiton couple is backing a UK-wide campaign to raise awareness of a rare form of epilepsy that affects their daughter. Jennifer and Tom Allen's nine-year-old daughter, Beth, has Dravet Syndrome.

The company has already secured approval for Fintepla in treating Dravet syndrome and Lennox-Gastaut syndrome.

A Surbiton couple, whose 9 year-old daughter has Dravet Syndrome, a rare, life-limiting, form of epilepsy, are backing a ...

Just leaving the house is no small undertaking for Quincy Hostager and his mom, Maria. “It’s a lot,” she says. “He has a G ...

The awards were unveiled yesterday to mark International Dravet Syndrome Awareness Day – a day dedicated globally to raising ...

Scientists at the USC Leonard Davis School of Gerontology have discovered a key connection between high levels of iron in the brain and increased cell damage in people who have both Down syndrome ...

Stoke Therapeutics, Inc. (Nasdaq: STOK) is a biotechnology company dedicated to restoring protein expression by harnessing the body’s potential with RNA medicine and has a lead investigational ...

Rare form of epilepsy causing caregivers to develop PTSD Researchers at Glasgow University find parents and caregivers of people with Dravet Syndrome need better support.

Paige Figi — mom to Charlotte Figi, the child whose story captivated the nation as CBD helped her seizure disorder — tells ...