A Surbiton couple, whose 9 year-old daughter has Dravet Syndrome, a rare, life-limiting, form of epilepsy, are backing a ...

Things took a turn when mom discovered Dravet syndrome while looking into what her son's symptoms could possibly mean. The condition is a rare form of epilepsy that causes frequent seizures. "In ...

Most adults living with Dravet syndrome will never be unable to work or care for themselves, according to the Children’s Hospital of Philadelphia. Patient advocates in Georgia say the website ...

A Surbiton couple is backing a UK-wide campaign to raise awareness of a rare form of epilepsy that affects their daughter. Jennifer and Tom Allen's nine-year-old daughter, Beth, has Dravet Syndrome.

UCB’s Fintepla has been approved to treat seizures associated with two epilepsy disorders and now has posted data that could ...

Dravet Syndrome causes severe and difficult-to-control seizures, varying degrees of learning disability and a spectrum of associated conditions called ‘comorbidities’.

Dravet Syndrome is a rare, severe and lifelong form of epilepsy. There is very little awareness about it, and even less money being raised and going towards a cure.

Charlotte was diagnosed with Dravet syndrome after "time waiting and very expensive testing." The diagnosis brought forth difficult realities: children with Dravet's typically do not survive into ...

UCB has shared promising results from a late-stage study of fenfluramine in patients with an ultra-rare form of epilepsy. The ...