What do Pearl Jam rocker, Eddie Vedder, and a Darboy family have in common? The answer is unfolding in the documentary ...
Add Yahoo as a preferred source to see more of our stories on Google. Pearl Jam's lead singer and guitarist wants your help finding a cure to a certain childhood disease. He even made a documentary ...
For too long, the promise of personalized therapies has been tantalizingly close, yet frustratingly out of reach for ...
(CNN) — “Matter of Time,” a documentary featuring Pearl Jam frontman Eddie Vedder that is set to debut this summer at the Tribeca Film Festival, is being billed as much more than a concert film – it’s ...
Researchers at the Sanford Stem Cell Institute have taken the fight against rare diseases to the lab, to patients’ bedsides ...
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Netflix is casting a light on a rare disease. Pearl Jam’s frontman is raising cash to cure it.
An organization started by Pearl Jam frontman Eddie Vedder and his wife, Jill, is using venture philanthropy to finance a ...
Lozano is a rare disease mom, neuroscience Ph.D. candidate at UC Davis, and board member for the PURA Syndrome Foundation. In May, a historic moment in science and medicine was captured in a single ...
Globally, an estimated 300 million people live with a rare disease. They typically experience isolation, diagnostic difficulties, lack of therapies, fragmented care, stigma, a struggle for recognition ...
GeneDx, which specializes in diagnostics for rare and ultra-rare genetic disorders, is helping to get kids the diagnostic attention they need as part of Diagnosis is Power. Currently, one in 10 ...
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